World Duchenne Awareness Day 2023

Every year on the 7th of September, the global Duchenne community come together to help raise awareness of Duchenne muscular dystrophy. The 7th of September is symbolic of the number of exons in the dystrophin gene - 79. The dystrophin gene is the one that is mutated and causes DMD.

To help raise awareness one of the things we can do is ask local landmarks illuminate red. This year, we were lucky enough to have Adelaide Oval, Adelaide Town Hall and Parliament House light up red in recognition of the day.

79 Exons, the charity I founded last year was able to provide our son's class-mates with a small gift to remind them of the significance of the day.